Showing posts with label members. Show all posts
Showing posts with label members. Show all posts

Sunday, 25 November 2012

A Tough Week

It's been a tough week. When someone you know dies, it throws you into a state of flux. When they take their own life, it fills you with a lot of different emotions. As well as feeling sad and distressed at his loss, I found myself feeling very angry, angry that it could have happened and angry that all the good work that he had done and the projects he had planned were now gone. I kept playing over in my mind how he could have been feeling and what led him to do it. Was the problem so great that there was no solution? Could anyone have helped prevent it? Perhaps he just wanted to go, no matter how much help and support was on offer. Perhaps he'd simply had enough and just didn't want to go on. Maybe we'll never know.
The void left by Andrew's death is huge. So many people knew him, from NHS executive through to support groups and mental health sufferers. For many he was their champion, someone who campaigned tirelessly for greater understanding and better services. Many have remarked how, if it hadn't been for Andrew, they wouldn't be here today. Andrew's legacy will live on through the people he has touched and the campaign he started. It will be up to the people Andrew knew to continue the good work he started and the various support groups to promote this work through training, awareness and fund raising.
Andrew's funeral is being held on Friday 7th December at Nocton Wood Burial Site, Lincoln. I will be attending with one of my support group colleagues on behalf of Blue Skies.

The week started quite badly with a visit to the bank, practically pleading with them to extend the arrangement we have with them for another three months to March next year, when the interest rate drops to 3.9% (we are currently on a fixed rate of 6.9%). Sadly, despite our pleas, the bank decided not to be as helpful as they could have been and as a result, we have had to seek the help once more of the Citizen's Advice Bureau. They have, as expected, been brilliant. They have written to the bank on our behalf in an attempt to make them see sense and I hope that we'll hear some good news soon. The alternative is a fine each month, harassing phone calls at all hours, and threatening letters. We were told by the adviser at the bank to expect this. This is despite being told by my wife of my poor mental health. The problem with banks, particularly the large ones, is that exceptions cannot be made for customers with specific needs. Unless you fit into one of their boxes, they don't want to know. Your circumstances trigger computer generated letters and harassing telephone calls from faceless call centres. They don't know you, they don't know your situation and they don't know how to deviate from the script in front of them or stuck to the side of their little partitioned cubicle. They don't care. It's not as if we're asking the earth, we're not - just three months leniency until we're able to take advantage of the new lower interest rate.
It's far to say that this is having a bearing on my mental state. I do worry about it constantly and if anything is going to drag me back down in the coming weeks, it is this.

I've been more busy than ever this last week with preparations for our funding bid application from the Mental Illness Prevention Fund. On Monday, I spend several hours going through the application at a colleague's place. Since then, I've been constantly updating things especially costs as we think up new items to add to the list. We're already at over £3,000!
On Tuesday, we visited the bank to start our application for a bank account. Whilst there, the bank manager opened up to us about her daughter, who suffers mental illness. In fact we spent most of the one hour appointment talking about this. The relief at having found a local support group was palpable. I should have been surprised, but I wasn't. Mental illness is everywhere. I was so glad that we'd been able to help and it was reassuring to know that we had the support of our bank manager!

Thursday was particularly stressful and I found myself feeling quite emotionally drained. Our members are in need, that is why they attend the group. The company of others, particularly those who understand and who have lived experience of their illness, is important to them. For many, they simply wouldn't get out of bed if they didn't have the group. Sadly, several were in a distressed state and in greater need of our support than normal. It is very sad to see them this way and I feel frustrated at not being able to help more. I've seen what desperation does and I'm doubly keen to ensure we offer all the support we can when it is needed and an assurance that it is there when it is not. To further the types of support we are able to offer, I would very much like for us to be trained in counselling skills. I have been asked for counselling and it would be great if we were able to offer this. For some the thought of having to see a 'professional' is very off-putting and it is very important that our members feel comfortable and at ease.

A difficult visit to my parent's this morning. I felt like a caged animal. I do whenever I'm with family. They don't talk to me (perhaps they don't know what to say to someone with mental illness), and I feel quite ostracised. The longer I'm there, the worse I feel. Paranoia soon sets in and I become anxious about what they are thinking and saying about me. It is horrible, I feel terrible and it's a situation I always try to avoid. Of course they don't understand and I get comments like 'you're not talking very much' and 'cat got your tongue?'. The people I work with do, they more than understand. They go through it every day, the same feelings just like me. I'm so glad I know them and I would be lost without them.

The weather is once again in the news. As I type this, I see that two people have so far lost their lives due to flooding and falling trees. It is worse in the West where flooding is the main problem due to burst rivers and breached defences. There was a time when flooding on this scale would have been a singular event and treated as a major crisis. Nowadays, it is all too common. Flooding is becoming a regular occurrence and it is becoming more and more difficult to accept those who claim that our weather patterns are not changing. It is clear that our weather is worsening and those living in flood hit areas of the country should expect more and more events such as those we have witnessed this week.

Tuesday, 23 October 2012

A Day of change & a damned culture

It feels like a day of change today. This morning we welcomed two new members to our support group. Both are unique and bring their own problems and experiences. I am reminded of just how diverse society is.  It is very easy to get used to people, those you see regularly and interact with. New people bring fresh insight and dynamics, and it is interesting to see the new connections being made between the new and old members of the group. Change can be good, but it can feel odd.

Weather today has been pretty miserable. It's still very misty, but quite mild. My drive to Spalding this morning was peppered with countless mindless idiots who don't understand when they should use the bright shiny lights on the front of their cars. Another (blue Vauxhall Cavalier driver) even thought it would be great to overtake anything in front of him, at speed and without indication. In a changing world, one thing seems to remain constant - the driving skills and behaviour of South Holland road users. Rant over.

I see that Ceefax will be switched off tonight at 11.30pm when Northern Ireland's remaining analogue TV signal is powered down for good. It's amazing to read that Ceefax has been around for 38 years and how at its peak in the 1990's, 20 million viewers regularly used the service, relying on it for their news headlines, weather forecasts and and sports results - all in a simple though blocky format.

The Jimmy Savile scandal is still very much in the news and continues to dominate the headlines. George Entwistle appeared before MP's earlier today to explain why the Newsnight report into the original allegations had been dropped. I like many do find his explanation a little difficult to understand and I question why he was not in the least bit curious as to why the report had been cancelled. I find it very hard to believe that a person in his position would not want to know why, or enquire at the very least into what the report was about.
I do feel that although obviously the person at the centre of the allegations and investigations is Jimmy Savile, what we are also investigating and to some extent blaming, is an entire era and its culture. It seems to me that it is not just the actions of an individual, but a culture that allowed for such actions to take place and go unreported for so long. I cannot believe that no one else knew. One only has to watch an edition of 'Top of the Pops' from the 1970's to see young girls literally falling all over the presenters. Other programmes of the era record over-familiarity between presenters and audience members. There is a stark physical element to many - arms around shoulders and waists, embraces and touching - that today simply would not happen. It would be judged as assault, pure and simple. The culture then was totally different to the culture of today, and it is the culture then that played an important part in allowing the abuse to take place. We judge that period by the standards of today. Yes it was wrong, very wrong but the culture and the society of the 1970's allowed it and expected to see it - a few hours of TV from the period is evidence enough.

My Moodscope rating is 33% today, pretty good.

Lynda Bellingham

I was shocked to hear of the passing of Lynda Bellingham on Sunday. I had known she was terminally ill, but I really thought, as did man...