A Needless Journey...?

Being diabetic means I have to be checked regularly by my GP and diabetic nurse. I don't mind this, it's all part of being a Type 2 Diabetic. A few months ago, I began Lantus insulin injections. I knew it was only a matter of time before the medication would cease to be effective and I had accepted the fact that I would at some point have to inject myself each day. To be honest, I'm quite comfortable with it though it was a little daunting at first. The needle is tiny and most of the time, I don't feel a thing. 

The move to insulin meant that I had to inform the DVLA. I've been quite open with them throughout and I've never heard anything from them until recently. They sent me a letter asking me to have a diabetic medical assessment with my GP. The form they sent him to complete was huge and I did feel a little sorry for him as he had claimed it had taken several hours to complete. I didn't doubt him - the form was the thickness of a short novel. Form completed, I expected them to be satisfied.
A few days later I received a call to tell me they need me to attend an assessment by one of their own appointed diabetes specialists. They told me they would send a form and that I would need to make the appointment myself and send the form back to them telling them the date and time of the appointment. I called the hospital at Peterborough and duly made the appointment. It's later this month, and though I don't object to the assessment, I'm a little put out at having to drive the nearly 40 miles each way to get to it. When I asked what it would entail, I was told it was to go through my last three months of readings (I have to test my blood sugar at least three times a day). It suddenly struck me that I am having to travel a fair distance to attend an appointment with a specialist, taking up his valuable time, and wasting mine, when I could just as easily email a copy of the readings to him. If that is indeed all he needs to see, then surely this would be more efficient?
I have to see a DVLA appointed specialist as I have a Class 2 license entitlement (buses and coaches), though I would never be employed to drive passengers because of my health. This all got me thinking some more and better still, why doesn't someone put a system in place whereby my readings are automatically sent to my GP or a database held by the NHS? The DVLA could then check at any time to see if I'm having any lows and how often. They could even set the system to 'alarm' whenever a reading is below 3 mmol sending an email to the GP, diabetic nurse or even the DVLA. It would certainly provide an incentive for sufferers to manage their condition. I know plenty of people who don't and I also knows what happens whenever I have a lapse in self-care.
I currently record my readings in a book, but I've started using an app on my iPad which plots my readings for me, producing a report for any period I choose. The app can be set to send reminders, alerts and even a report by email. I'm really hoping the specialist will want to see me for more than just a list of numbers. If not, I will certainly be saying something...

A parent's dilemma

I have been following the Sally & Neon Roberts case with interest. As a parent, I wonder what I would do in a similar position. Thankfully my son is blessed with good health. There is a higher than normal chance of him developing diabetes as I have it, but this makes us extra cautious regarding his diet.
We live in a world nowadays where information is available at our fingertips. Medical reviews, studies and encyclopedias on medication and medical conditions is available for anyone to view on a computer. Nothing it seems is out of reach. With this in mind, it is no wonder that we carry out our own research into things that are wrong with us and the effects of treatment. We do it for ourselves and we do it for our family members. If , God forbid, anything was wrong with my son, I would insist on finding out all that I could. I would question any diagnosis and investigate any recommended treatment. I wouldn't go as far as refusing it, but I would want to formulate my own opinion based on solid research.

One of Sally Roberts' objections is to her son receiving radiotherapy, a process that targets an area of the brain where a tumour is present with radiation. The fact that a doctor had referred previously to this as 'scrambling the brain' probably didn't help one little bit. She is understandably concerned, as I would be. It is a natural parent's instinct to be concerned for one's child. Having said this, I have no doubt whatsoever that the medical advice given is correct and given the urgency of Neon's condition, it is right that the treatment is given. Still, I do understand Sally's concerns for her son.
I do wonder if she has left things a little late. The time for seeking second opinions and alternative diagnosis is early on when the tumour is first discovered. It is possible we know only part of the story and there is very likely to be more to this than has been reported in the media. There often is. The emphasis is most likely to be on making Sally appear to be a mother who takes risks with her son's health and is anti established forms of medical treatment. This of course is wrong.
Sometimes, we simply have to leave it to the experts. I say this in the full knowledge that sometimes it is right to question the opinion and diagnosis of a professional. I've done it myself, and been proved right. I have commented before now on situations where I appear to know more than my GP having resorted to the Internet. It does happen. We assume GP's are constantly connected to the Internet for the latest news in all things medical and health, but they are not. Sometimes, they are very lacking.
I'm certainly 'on the fence' with this one. I have enormous sympathy for the mother, but can't help feeling she has left things a little too late. This has necessitated the legal action we have seen for her son to receive urgent treatment and in effect overrule her wishes. After all, it is the life of Neon that is at stake here and everything should be done to provide him with the best possible treatment.

Another Bit of Me Not Working...

I had an appointment with my GP this morning. He had contacted me requesting I attend following a recent blood test. In truth it has been a while since I last saw him. He's actually a very good doctor, but I'm acutely aware like many that I don't do everything I should regarding my health and I am often criticised for it.
This morning he told me that my blood test had shown that I have significantly reduced Thyroid function, and that this is probably due to my Diabetes. He asked me if I'd been feeling tired and lacking energy. I replied that I have, I'm tired almost every day and I have nowhere near the energy I once had, even a couple of years ago. He also told me the slowed metabolism will cause weight gain - he only has to look at me to see that is true - and he poked my stomach with a grin.
It has all meant another tablet. This time, it's Levothyroxin and I need to take one daily. This should gradually  return things to their normal level but if not, he told me I would need a course of hormone replacement therapy.
I collected my tablets and I need to see him in a few weeks time after another blood test to see if the tablets have had any effect.
I don't know how I feel at having something else wrong with me. It does explain how I've been feeling most days and how I can easily fall asleep in the afternoon and evening. I'm thankful the tablet is quite tiny as I doubt if there is much room left in my daily tablet dispenser. As it is, I already warrant a NHS carrier bag when I collect my prescription every few weeks.
My GP retires Christmas Eve later this year. I didn't actually think he was that old, but I made a point of looking at him today. He's Chinese and I always think they never really age in the same way we do. He does look young and I would certainly not put him in the 55-60 years bracket. I wish him well and it will be sad to see him go. He's a great GP and he's seen me at my best and at my worst, helping me and convincing me that I had a future after my breakdown.
I've looked up my newly diagnosed condition and it's called Hypothyroidism. If nothing else, I suppose it will be something to talk about at my next Support Group Meeting.